ME/CFS/PVFS/FMS
are debilitating illnesses for which the causes are not yet understood.
However, there is often a trigger leading to the onset of illness; this might
be a virus such as influenza, glandular fever, hepatitis or tonsillitis. Less
frequently, the triggering factor may be vaccinations, working with pesticides,
anaesthetics or major stress. In some people no trigger can be readily
identified. The primary symptoms are chronic fatigue, disturbed sleep patterns,
waking from sleep feeling unrefreshed, muscle pain and stiffness, and problems
with concentration and short-term memory. Many people with these illnesses also
experience other symptoms, such as food allergies/intolerances, eye problems
and digestive problems, which vary widely from person to person. According to
the National Taskforce on NHS Services, ME costs the nation about £1
billion annually.
Current research suggests that, in the UK alone, there are 150,000 people
suffering from ME. It can affect people of any age but the onset is unlikely to
occur before the age of 7 or later than the age of 60.
There are literally hundreds of studies being conducted world-wide but,
unfortunately, so far no one has discovered a cure. Some people continue to
suffer for the rest of their lives. Others seem to recover fully after a few
years. The majority of people, however, will have remissions and relapses over
a number of years. Sometimes they will feel well and other times very ill, even
fluctuating on a daily basis. Whilst there is no cure, there is increasing
evidence that suggests ME can be managed; this may call for an entire change of
life style. Sufferers must slow down, avoid all stress and learn to
"listen" to their bodies. Individuals will learn, for example, what
is to be avoided, and when and how often to rest. Some people continue to
manage full-time work; but the majority have to reduce their working hours or
give up work entirely.
The short answer is "yes". Sufferers need support from carers and each other,
and information to discover how best to manage the illness. Sufferers can also
be helped with good access to information and practical aid. All of us will
benefit if there is more research into causes, cures and treatments.